From first symptoms to hospitalization for nervous anorexia: which resources do parents seek and how do they perceive them?
DOI:
https://doi.org/10.25758/set.716Keywords:
Nervous anorexia, Parental perception, Resources, Multidisciplinary team, Period of untreated diseaseAbstract
Aim of the study – To identify different resources used by parents of children suffering from nervous anorexia, after acknowledging the first symptoms; to characterise periods of time between first symptoms acknowledgment in their children, help request, access to support, and hospitalisation; to identify resources missed by parents. Methods – Anonymous semi-structured online survey to parents of children suffering from nervous anorexia hospitalised in a Unit for Child Psychiatry at an urban hospital in the central area of Portugal, from January 2018 to December 2019. Statistical analysis of results done through an Excel spreadsheet. Results – Health professionals were identified as the most frequently used resource for information or emotional support. Among these professionals, family doctors and paediatricians were considered the most accessible resources. Only 18.2% of parents stated that their children had prolonged medical support (over six months) before being hospitalised. As to resources indicated by parents as missing, 84.8% pointed to psychological or psychiatric support for themselves. Discussion – This study has highlighted the existence of a long period of time between the acknowledgment of the first symptoms of the disease and the decision-making of requiring a technical assessment. Conclusion – There are still some serious flaws in the early diagnosis of children and adolescents suffering from nervous anorexia. Therefore, it seems crucial to maximise early diagnosis and referral by health professionals, notably family doctors, whom these families contact first-hand.
Downloads
References
Herpertz-Dahlmann B, Dahmen B. Children in need: diagnostics, epidemiology, treatment and outcome of early onset anorexia nervosa. Nutrients. 2019;11(8):1932.
Austin A, Flynn M, Richards K, Hodsoll J, Duarte TA, Robinson P, et al. Duration of untreated eating disorder and relationship to outcomes: a systematic review of the literature. Eur Eat Disord Rev. 2021;29(3):329-45.
Thomson S, Marriott M, Telford K, Law H, McLaughlin J, Sayal K. Adolescents with a diagnosis of anorexia nervosa: parents’ experience of recognition and deciding to seek help. Clin Child Psychol Psychiatry. 2014;19(1):43-57.
Kästner D, Weigel A, Buchholz I, Voderholzer U, Löwe B, Gumz A. Facilitators and barriers in anorexia nervosa treatment initiation: a qualitative study on the perspectives of patients, carers and professionals. J Eat Disord. 2021;9(1):28.
Haigh R, Treasure J. Investigating the needs of carers in the area of eating disorders: development of the Carers’ Needs Assessment Measure (CaNAM). Eur Eat Disord Rev. 2003;11(2):125-41.
Coelho JS, Suen J, Marshall S, Burns A, Lam PY, Geller J. Parental experiences with their child’s eating disorder treatment journey. J Eat Disord. 2021;9(1):92.
Evans EJ, Hay PJ, Mond J, Paxton SJ, Quirk F, Rodgers B, et al. Barriers to help-seeking in young women with eating disorders: a qualitative exploration in a longitudinal community survey. Eat Disord. 2011;19(3):270-85.
Hamilton A, Mitchison D, Basten C, Byrne S, Goldstein M, Hay P, et al. Understanding treatment delay: perceived barriers preventing treatment-seeking for eating disorders. Aust N Z J Psychiatry. 2022;56(3):248-59.
Regan P, Cachelin FM, Minnick AM. Initial treatment seeking from professional health care providers for eating disorders: a review and synthesis of potential barriers to and facilitators of “first contact”. Int J Eat Disord. 2017;50(3):190-209.
Thapliyal P, Mitchison D, Mond J, Hay P. Gender and help-seeking for an eating disorder: findings from a general population sample. Eat Weight Disord. 2020;25(1):215-20.
Fatt SJ, Mond J, Bussey K, Griffiths S, Murray SB, Lonergan A, et al. Help-seeking for body image problems among adolescents with eating disorders: findings from the EveryBODY study. Eat Weight Disord. 2020;25(5):1267-75.
Hart LM, Granillo MT, Jorm AF, Paxton SJ. Unmet need for treatment in the eating disorders: a systematic review of eating disorder specific treatment seeking among community cases. Clin Psychol Rev. 2011;31(5):727-35.
Thomson S, Marriott M, Telford K, Law H, McLaughlin J, Sayal K. Adolescents with a diagnosis of anorexia nervosa: parents’ experience of recognition and deciding to seek help. Clin Child Psychol Psychiatry. 2014;19(1):43-57.
Czepczor K, Kościcka K, Brytek-Matera A. Attitudes and awareness towards eating disorders among students: a preliminary study. Arch Psychiatry Psychother. 2016;18(1):48-54.
Spencer L, Schmidt-Hantke J, Allen K, Gordon G, Potterton R, Musiat P, et al. A web-based intervention for carers of individuals with anorexia nervosa (We Can): trial protocol of a randomised controlled trial investigating the effectiveness of different levels of support. Internet Interv. 2018;16:76-85.
Yim SH, Spencer L, Gordon G, Allen KL, Musiat P, Schmidt U. Views on online self-help programmes from people with eating disorders and their carers in UK. Eur J Public Health. 2021;31(Suppl 1):i88-93.
Arts H, Lemetyinen H, Edge D. Readability and quality of online eating disorder information: are they sufficient? A systematic review evaluating websites on anorexia nervosa using DISCERN and Flesch Readability. Int J Eat Disord. 2020;53(1):128-32.
Smith AT, Kelly-Weeder S, Engel J, McGowan KA, Anderson B, Wolfe BE. Quality of eating disorders websites: what adolescents and their families need to know. J Child Adolesc Psychiatr Nurs. 2011;24(1):33-7.
Bullivant B, Rhydderch S, Griffiths S, Mitchison D, Mond JM. Eating disorders “mental health literacy”: a scoping review. J Ment Health. 2020;29(3):336-49.
Downloads
Published
Issue
Section
License
Copyright (c) 2023 Saúde e Tecnologia
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
The journal Saúde & Tecnologia offers immediate free access to its content, following the principle that making scientific knowledge available to the public free of charge provides greater worldwide democratization of knowledge.
The journal Saúde & Tecnologia does not charge authors any submission or article processing charges (APC).
All content is licensed under a Creative Commons CC-BY-NC-ND license. Authors have the right to: reproduce their work in physical or digital form for personal, professional, or teaching use, but not for commercial use (including the sale of the right to access the article); deposit on their website, that of their institution or in a repository an exact copy in electronic format of the article published by Saúde & Tecnologia, provided that reference is made to its publication in Saúde & Tecnologia and its content (including symbols identifying the journal) is not altered; publish in a book of which they are authors or editors the total or partial content of the manuscript, provided that reference is made to its publication in Saúde & Tecnologia.