Caregiver’s characteristics of disability elderly cared by home-teams of the National Network of Integrated Care in the Lisbon and Tagus Valley: cross-sectional study
DOI:
https://doi.org/10.25758/set.1711Keywords:
Aging in place, Home visit, Caregiver, Cell phones, ComputerAbstract
Introduction – Successful aging in place depends on the informal caregiver. The caregiver is the critical element in care, we have therefore characterized: caregivers and the association between caregiver characteristics and the time of care and their burden. Methodology – Cross-sectional study, a sample size of 230 participants spread over 25 integrated continued care teams randomly selected. Data collection occurred by interviewing the caregiver, through a semi‑structured questionnaire, at the patient’s home. We proceeded to the data description and analysis (chi-square and Spearman correlation). Results – The mean age of caregivers was 66.46 years. Ninety-seven caregivers (42.1%) were of working age (18 to 64 years). Two hundred and twenty-six (98%) were family members, predominantly spouses or children, and less than half (47%) provide technological care. There was a negative tendency of association between caregiver burden and self-perception of health status and caring satisfaction. Telephone access to professionals was valued by the majority (85.7%) of caregivers and having the majority (88.3%) a mobile phone and less than half (40.4%) a computer. Discussion – Elderly caring is female, familiar (spouses and children), and aged 65 years or over. The number of active-aged caregivers in which more than half do not work is a social and economic issue that merits reflection. The subjective caregiver burden was inversely associated with caring satisfaction and the self-perception of health status. Hours of formal care seem to be an economic indicator and not a need for care. Some relevant results were the association between caregiver’s scholar level and the technological care and the information and communication technologies use.
Downloads
References
Mestheneos E. Ageing in place in the European Union. IFA Glob Ageing. 2011;7(2):17-24.
Gomes B, Sarmento VP, Ferreira PL, Higginson IJ. Estudo epidemiológico dos locais de morte em Portugal em 2010 e comparação com as preferências da população Portuguesa [Epidemiological study of place of death in Portugal in 2010 and comparison with the preferences of the Portuguese population]. Acta Med Port. 2013;26(4):327-34. Portuguese
Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ. 2006;332(7540):515-21.
Daveson BA, Alonso JP, Calanzani N, Ramsenthaler C, Gysels M, Antunes B, et al. Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe. Eur J Public Health. 2014;24(3):521-7.
Van Durme T, Macq J, Jeanmart C, Gobert M. Tools for measuring the impact of informal caregiving of the elderly: a literature review. Int J Nurs Stud. 2012;49(4):490-504.
Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage. 2003;26(4):922-53.
Rose JH, Bowman KF, O'Toole EE, Abbott K, Love TE, Thomas C, et al. Caregiver objective burden and assessments of patient-centered, family-focused care for frail elderly veterans. Gerontologist. 2007;47(1):21-33.
Bastawrous M. Caregiver burden: a critical discussion. Int J Nurs Stud. 2013;50(3):431-41.
Duggleby W, Williams A, Ghosh S, Moquin H, Ploeg J, Markle-Reid M, et al. Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health Qual Life Outcomes. 2016;14:81.
Bell CL, Somogyi-Zalud E, Masaki KH. Factors associated with congruence between preferred and actual place of death. J Pain Symptom Manage. 2010;39(3):591-604.
Bartlett H, Carroll M. Ageing in place down under. IFA Glob Ageing. 2011;7(2):25-34.
Broeiro P. Cuidar no lugar: um apelo ao sentido de coerência e à resiliência [Caring in place: a call for a sense of coherence and resilience]. Rev Port Med Geral Fam. 2016;32(1):6-8. Portuguese
Cunha MJ. O impacto do cuidado informal na qualidade de vida do cuidador [Dissertation]. Porto: Instituto Politécnico do Porto; 2012.
Santana S, Sousa-Pereira A. Da utilização da Internet para questões da saúde e doença em Portugal: possíveis repercussões na relação médico-doente? [On the use of the Internet for health and illness issues in Portugal: repercussions in the physician-patient relationship]. Acta Med Port. 2007;20(1):47-57. Portuguese
Procter R, Wherton J, Greenhalgh T, Sugarhood P, Rouncefield M, Hinder S. Telecare call centre work and ageing in place. Comp Support Coop Work. 2016;25(1):79-105.
Espanha R, Mendes R, Fonseca RB, Correia T. Os Portugueses, a saúde e a Internet. Lisboa: Fundação Calouste Gulbenkian; 2012. ISBN 9789898380050
Krishna S, Boren SA, Balas EA. Healthcare via cell phones. Telemed J E Health. 2009;15(3):231-40.
Lee H, Singh J. Appraisals, burnout and outcomes in informal caregiving. Asian Nurs Res (Korean Soc Nurs Sci). 2010;4(1):32-44.
Gonçalves-Pereira M, Zarit SH. The Zarit Burden Interview in Portugal: validity and recommendations in dementia and palliative care. Acta Med Port. 2014;27(2):163-5.
Crondahl K, Karlsson LE. The nexus between health literacy and empowerment: a scoping review. SAGE Open. 2016;6(2). [Epub ahead of print]
Lopes M, Mendes F, Escoval A, Agostinho M, Vieira C, Vieira I, et al. Plano nacional de saúde 2011-2016: cuidados continuados integrados em Portugal - Analisando o presente, perspectivando o futuro [Internet]. Évora: Centro de Investigação em Ciências e Tecnologias da Saúde da Universidade de Évora; 2010. Available from: http://1nj5ms2lli5hdggbe3mm7ms5.wpengine.netdna-cdn.com/files/2010/08/CSC1.pdf
Decreto-Lei nº 101/2006, de 6 de junho. Diário da República. 1ª série-A(109).
Broeiro P. Morbilidade em idosos dependentes ao cuidado das equipas domiciliárias da Rede Nacional de Cuidados Integrados na região de Lisboa e Vale do Tejo: estudo transversal observacional. Acta Med Port. 2017;30. [No prelo]
Virués-Ortega J, De Pedro-Cuesta J, Seijo-Martínez M, Saz P, Sánchez-Sánchez F, Rojo-Pérez F, et al. Prevalence of disability in a composite ≥75 year-old population in Spain: a screening survey based on the International Classification of Functioning. BMC Public Health. 2011;11:176.
Instituto Nacional de Estatística, Instituto Nacional de Saúde Dr. Ricardo Jorge. Inquérito nacional de saúde 2005/2006. Lisboa: INE/INSA; 2009.
Vintém JM. Inquéritos nacionais de saúde - Auto-percepção do estado de saúde: uma análise em torno da questão de género e da escolaridade [National health interview surveys: self-perceived health status: an analysis about gender and schooling]. Rev Port Saúde Pública. 2008;26(2):5-16. Portuguese
Ferreira F, Pinto A, Laranjeira A, Pinto AC, Lopes A, Viana A, et al. Validação da escala de Zarit: sobrecarga do cuidador em cuidados paliativos domiciliários, para população portuguesa [Validation of the Zarit’s scale (“Zarit Burden Interview”) for the portuguese population in the field of domiciliary palliative patient care]. Cad Saúde. 2010;3(2):13-9. Portuguese
Davis KL, Marin DB, Kane R, Patrick D, Peskind ER, Raskind MA, et al. The caregiver activity survey (CAS): development and validation of a new measure for caregivers of persons with Alzheimer's disease. Int J Geriatr Psychiatry. 1997;12(10):978-88.
Araújo F, Pais-Ribeiro JL, Oliveira A, Pinto C. Validação do Índice de Barthel numa amostra de idosos não institucionalizados [Validation of the Barthel Index in a sample of non-institutionalized elderly]. Rev Port Saúde Pública. 2007;25(2):59-66. Portuguese
Koller D, Schön G, Schäfer I, Glaeske G, van den Bussche H, Hansen H. Multimorbidity and long-term care dependency: a five-year follow-up. BMC Geriatr. 2014;14:70.
Gonçalves-Pereira M, Carmo I, da Silva JA, Papoila AL, Mateos R, Zarit SH. Caregiving experiences and knowledge about dementia in Portuguese clinical outpatient settings. Int Psychogeriatr. 2010;22(2):270-80.
Curry LC, Walker C, Hogstel MO. Educational needs of employed family caregivers of older adults: evaluation of a workplace project. Geriatr Nurs. 2006;27(3):166-73.
Oliveira E. Portugal: uma síntese estatística regional até ao nível de município [Internet]. Lisboa: Gabinete de Estratégia e Estudos, Ministério da Economia; 2014. Available from: http://www.gee.min-economia.pt/?cfl=32292
Downloads
Published
Issue
Section
License
Copyright (c) 2022 Saúde e Tecnologia
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
The journal Saúde & Tecnologia offers immediate free access to its content, following the principle that making scientific knowledge available to the public free of charge provides greater worldwide democratization of knowledge.
The journal Saúde & Tecnologia does not charge authors any submission or article processing charges (APC).
All content is licensed under a Creative Commons CC-BY-NC-ND license. Authors have the right to: reproduce their work in physical or digital form for personal, professional, or teaching use, but not for commercial use (including the sale of the right to access the article); deposit on their website, that of their institution or in a repository an exact copy in electronic format of the article published by Saúde & Tecnologia, provided that reference is made to its publication in Saúde & Tecnologia and its content (including symbols identifying the journal) is not altered; publish in a book of which they are authors or editors the total or partial content of the manuscript, provided that reference is made to its publication in Saúde & Tecnologia.